Today (2/9/2016) we met with our team to discuss the results of the pathology report. The report did not show that the tumor had matured; it showed there are still immature neuroblastoma cells. Which means more chemo.
This time the chemo will be 5 days in a row with the Neulasta injection on the 6th day. Two chemo drugs will be used, cyclophosphamide (which she had before) and Topotecan (new to us).
They will do 2 cycles (each cycle is 21 days) then measure with MRI and MIBG. If needed after that point would be more cycles.
We are trying to stay positive. The prognosis is still very good in the long run.
Because her port was already removed, she will now get a PICC line (basically a long term IV) in her arm, which we will need to flush daily at home and keep dressing on it.