Today (9/11) we were back at LPCH for the results of last week’s scans. Good news is that the mass is about the same, slightly larger. It is measuring approx. 6.2 x 4.7 x 8.1 (previously July’s scan was measuring 5.8 x 4.3 x 7.5).
The urine numbers are elevated slightly, VMA 37.4 and HVA 89.1 (previously around 25 and mid 70s).
The plan for now is to follow with imaging in 8 weeks with an MRI, MIBG and PET scan. Our oncs are aware of the reaction last week with the MIBG injection and moving forward we will pre-medicate with steroids and have a safer environment (child size equipment, appropriate drugs). At first we (parents) didn’t want another MIBG but our Doctor explained the importance of the information it provides- and specifically to neuroblastoma. So although we are scared we need to move forward.
Great news is we are free for 8 weeks woohoo!!
Wagon ride at LPCH
Reba Zumberge 
You are amazing, grateful you have so many people in your life to support this stressful journey !
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Toughest baby I’ve ever had the pleasure of knowing
Proud to call her my family!!
Tata love you baby 😍
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Great that you have an 8 week break! Will be praying for good results in November. Lots of love to all the family.
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Thank you for sharing. You are in our prayers always.
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Yay for 8 weeks! Will be thinking about Reba and you all for the next MIBG. Hugs!
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