Changes…10/20/21

Today was scan day. It was our first time at Primary Children’s Hospital in Utah. New Hospital, new oncologist, Dr. Fluchel. After being at Packard in Stanford for 6.5 years we were hesitant to switch our care team. Scared of starting somewhere new. We wanted to move to Idaho years ago but were too afraid to make the leap of faith. But now we have. ..and no regrets! Today was a great experience for Reba. She had MRI with contrast and labs. They had virtual goggles just like Stanford so Reba could watch a movie during the long 2 hour scan. She’s such a trooper- didn’t move a muscle for over two hours…. incredible.

Then we met her new Doctor, Dr. Fluchel who had reviewed a huge box of Reba’s history from Stanford and is helping ease us into this new transition and communicate with Stanford as we move forward.

The MRI shows the mass is more or less about the same size as it was in February, measuring 5.7 x 8.8 x 9 cm. In February it measured 5.5 x 7.9 x 9 cm. Because of it’s difficult shape, it is hard to measure the mass exactly the same way. Our new doctor is happy to have a new baseline as we move forward. So for now we wait on lab results (blood and urine) and plan on coming back in 6 months.

Changes. Moving to a new state. A new home. New school for the girls. New oncologist for Reba. Shocking and yet refreshing. We are grateful we took this leap of faith.

“Courage is the choice and willingness to confront uncertainty. Life is all about taking risks. If you never take a risk, you will never achieve your dreams.”

Reba chose this crown at the gift shop for her dolls and had fun with it all day. 😊
Reba is a pro with IVs
Humdinger is photo bombing
Crown now on Sammy the Sloth, the hospital gave her Sammy today.
995 lbs.!
Heidi and Daddy came today too! And baby with the crown 💓

12 thoughts on “Changes…10/20/21

  1. Aunt Shirley and Uncle Pat October 20, 2021 / 5:35 pm

    Good news! Love Sammy the Sloth, and the pumpkins. Reba looks to be taking it all in stride! ❤️❤️❤️

    Liked by 1 person

  2. Yaya and Tata October 20, 2021 / 5:48 pm

    Such wonderful news!!!💗💗💗
    You were all brave to take the leap and Reba is yet again so incredible!!👑😘

    Liked by 1 person

  3. Lynne & Bob October 20, 2021 / 6:21 pm

    Thank you for sharing Leah. Beautiful photos. 🙏🏻

    Liked by 1 person

  4. Windy and Grant October 20, 2021 / 6:42 pm

    So grateful Reba’s health remains stable! She is obviously flourishing, and enjoying the changes, wonderful to see. Sending love 💕

    Liked by 1 person

  5. Ming October 20, 2021 / 8:22 pm

    Reba is such an amazing girl! Give her hugs for me!

    Liked by 1 person

  6. Laura October 20, 2021 / 8:24 pm

    That crown looks cute on everyone! Congratulations to all of you on following your dreams, and to Reba for being an Amazon!

    Liked by 1 person

  7. Dinah October 20, 2021 / 8:24 pm

    Such wonderful news! Sending all y’all so much love!!

    Like

  8. Nancy. Kvam October 20, 2021 / 10:41 pm

    Thank you for sharing. The photos are so precious. I am happy to hear that your health care transition went smoothly.
    It is great news that things are stable and not changing very much. i will send prayers for Reba and your family. May all be well!
    Lots of love to your family! We miss you. It was just two years ago that you were able to piano at our concert. We will be giving a concert
    next Friday evening, October 29. i am so happy the students are able to play together again this fall! We are all looking forward
    to this event with great anticipation. It will be a lot of fun! All the best to you!

    Liked by 1 person

  9. stephanie gillis October 20, 2021 / 10:51 pm

    praying for this sweet sweet girl of yours that sets your soul on fire. lots to be grateful for. and love watching your beautiful babes multiply and grow. 😘❤️‍🔥

    Liked by 1 person

  10. Sarojani October 21, 2021 / 8:07 am

    Dear Ones
    I am happy your move is so uplifting to you all.
    AND glad that Reba is being so cared for, as always,

    Sending Love and Blessings to your whole beautiful family!

    Liked by 1 person

  11. Guido Diaz October 21, 2021 / 5:28 pm

    Change is good, love you guys.
    Missing you so much.

    Liked by 1 person

  12. Jane October 23, 2021 / 3:05 pm

    Praise for your courage in making the move, and for your excellent medical team. Prayers for the whole family!

    Liked by 1 person

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