Yesterday 5/11 Reba had an MRI and labs at Primaries in Salt Lake City. It was a very long day. The scan showed basically unchanged dimensions. The mass is measuring 8.2 cm x 7.8 x 10 cm whereas the last scan (10/20/21) was measuring 7.9 x 9 x 10.3 cm.
Our oncologist Dr. Fluchel feels like it is time to transfer Reba to post 5 year Survivorship care team. Reba has been in a careful surveillance regiment for the past 5 years since she stopped treatment in Spring of 2017. Because Reba had refractory Neuroblastoma, or a relapse and required additional chemotherapy we have been keeping a close eye on the mass for 5 years. Dr. Fluchel feels that she has been very stable and would like to transfer her care to a team that will continue to monitor, but in a different way. Next year the plan is an ultrasound, and to follow her blood/urine numbers.
It feels surreal honestly. We are scared to back off, and yet at the same time this is the absolute best news we could have hoped for.
Yes the mass is still there, but it is likely mostly scarred and matured- meaning (hopefully) the cancer cells will not keep dividing.
The mass is encasing the celiac axis, superior mesenteric artery and bilateral renal arteries. It also displaces the pancreas anteriorly (rude unwanted guest!). In a perfect world the mass would disintegrate and be gone. At this point however her body is living with it, and she is thriving. So for now we let it be, and enjoy life. Hallelujah, Amen!! Now time to celebrate.