Long Week Ahead

Reba’s blood levels seemed pretty steady on Thursday. Today the home nurse came and drew blood. The results showed that Reba’s hemoglobin is 6.4 and platelets at about 30. Both are very low, but the Stanford doctors told us that transfusions can wait until morning, so we’ll be at Stanford early.

Reba has been practicing her crawl this past week and she has unfortunately started to get pretty good at it right when her platelet count is low enough to cause bruising. Hopefully after her blood transfusion and platelet infusion in the morning she will be right back at it.

Wrestling , sister style


After the infusions, she has a radioactive iodine injection scheduled at 2pm. This is the tracer that will allow the doctors to visualize the vitality of the tumor from the MIBG scan.

The MIBG scan is scheduled for Wednesday. This will mean she will be under general anesthesia, and the MRI couldn’t be scheduled on the same day.

On Thursday, Reba will have her MRI scan, which will show the size of the tumor. Again, she will be under general anesthesia.

The results from the scans will be reviewed by the oncology team and by Thursday, July 9, they should be able to tell us if Reba can stop chemo or whether more may be necessary. This is going to be a very important couple of weeks.

Thank you all for your thoughts and prayers.

8 thoughts on “Long Week Ahead

  1. Jane and Dave Kretzmann June 29, 2015 / 10:14 pm

    Your whole family is constantly in our prayers. Jane and Dave


  2. Aunt Shirley, Uncle Pat, Kelly and Casey June 29, 2015 / 10:18 pm

    Can’t believe how much Zoe has grown in these pics. I thought she was helping Reba Up :). Love and prayers and will be thinking of you all early tomorrow morning.


  3. Sarojani Rohan June 30, 2015 / 12:31 am

    Sending Love and Blessings to you all—Thank you for these posts. You are not alone on this crazy journey. MANY are walking with you.

    Liked by 1 person

  4. Miriam June 30, 2015 / 7:42 pm

    Sending you lots of love and thinking of your family.

    Liked by 1 person

  5. Chico and Linda July 1, 2015 / 8:28 am

    We are praying for good news on July 9th Pictures are so fun to see she and big sister are darling!!!!!!!!! cute like their parents. Love Aunt Linda And Uncle Chico.


  6. Valery Hurdle July 3, 2015 / 10:21 pm

    A lot of my friends are prayer-invested in Reba and have asked if I could set up a Facebook page. I told them that I didn’t have permission, but was wondering if it would be OK to give two close friends the link to these updates?


  7. Kathleen Kasdorf July 8, 2015 / 7:47 am

    Hoping for good news tomorrow. We are up to our eyeballs in moving prep. My granddaughter arrives tomorrow and will make the cross country road trip with us. I guess I won’t see you before we leave:-(

    Liked by 1 person

  8. John Grassadonia July 9, 2015 / 9:54 am

    Leah…Little Reba and family continue to be in our prayers. We hope that you hear good news from the Doctors today. We miss you.
    Your Music Family in Christ at St. Josephs

    Liked by 1 person

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