Today 1/28/16 we met with our Stanford Oncology Team to discuss Reba’s scan results.
Unfortunately the tumor has grown.
It is now measuring 4.7 x 6.1 x 6.3 where as before it was 2.8 x 4.1 x 2.9
The next step is surgery, Monday February 1st. (Also Nik and my anniversary…)
The surgeons met with us today as well. Dr. Bruzoni will be conducting the surgery. It will involve a large incision, hip to hip, so he can really get in there to attempt to remove parts of the tumor. The tumor is encasing many vital blood vessels, so complete removal is not possible. He told us he will remove as much as he feels is safe.
Reba’s pain management post surgery will involve a spinal epidural, for a few days. We will be at the hospital for approximately 4-7 days depending on how Reba is feeling.
We are devastated. We have been getting good news for several months, and the port was removed- this came as a shock to us.
Our Doctors let us know a couple scenerios. One is that we may need to put in another port and treat with more chemotherapy. The other possibility is sometimes they have seen tumor growth in the past with neuroblastoma and it can indicate that the tumor is differenciating, or maturing. They have no way of knowing until they biopsy the mass on Monday. They will then test the tumor and be able to tell us if the mass is favorable or unfavorable then we will go from there. They will also do bone marrow aspirations during the surgery Monday.
Please keep us in your hearts next week as we enter this nightmare.