Results and Surgery

Today 1/28/16 we met with our  Stanford Oncology Team to discuss Reba’s scan results.

Unfortunately the tumor has grown.

It is now measuring 4.7 x 6.1 x 6.3 where as before it was 2.8 x 4.1 x 2.9

The next step is surgery, Monday February 1st. (Also Nik and my anniversary…)

The surgeons met with us today as well. Dr. Bruzoni will be conducting the surgery. It will involve a large incision, hip to hip, so he can really get in there to attempt to remove parts of the tumor. The tumor is encasing many vital blood vessels, so complete removal is not possible. He told us he will remove as much as he feels is safe.

Reba’s pain management post surgery will involve a spinal epidural, for a few days. We will be at the hospital for approximately 4-7 days depending on how Reba is feeling.

We are devastated. We have been getting good news for several months, and the port was removed- this came as a shock to us.

Our Doctors let us know a couple scenerios. One is that we may need to put in another port and treat with more chemotherapy. The other possibility is sometimes they have seen tumor growth in the past with neuroblastoma and it can indicate that the tumor is differenciating, or maturing. They have no way of knowing until they biopsy the mass on Monday. They will then test the tumor and be able to tell us if the mass is favorable or unfavorable then we will go from there. They will also do bone marrow aspirations during the surgery Monday.

Please keep us in your hearts next week as we enter this nightmare.

How can she be sick when she is so happy?
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17 thoughts on “Results and Surgery

  1. Barbara & Ed January 28, 2016 / 4:15 pm

    Our heart is broken. Thinking of you, with all of our love, prayers and thoughts. May you all feel supported on that day. Love, b&e

    Like

  2. Robert and Heather Cook January 28, 2016 / 4:48 pm

    Praying for you all. Love you.

    Like

  3. raugusts January 28, 2016 / 5:21 pm

    This will never leave my heart,love you always, your family will always be with you! Your love and those who love you all are with you❤️❤️❤️🌹🌹🌹🎼🎶🎼🎶😘😘😘 and most decently with Zeba

    Like

  4. Diaz Family January 28, 2016 / 5:33 pm

    Our prayers to you, family and friends.

    We love you guys, please count with us, we are here for you.

    Like

  5. Patrick , Shirley, Kelly and Casey January 28, 2016 / 7:19 pm

    We are so sorry to hear the news of this setback. We love you all so much and will be offering extra prayers on Monday for successful surgery and favorable histology. Please give Reba a big hug from us. She always looks so content and happy! Remember to call on us any time if there is anything we can do to help out❤️❤️❤️

    Like

  6. Chris and Christine McCain January 28, 2016 / 7:45 pm

    I am sorry to hear this set back. We are praying and wishing with all our hearts that good news will follow.

    Like

  7. katrinalearned January 28, 2016 / 8:55 pm

    Thinking of you all through this difficult time. Dr Bruzoni is AWESOME and did Aurora’s surgery! Sending tons of love!

    Like

  8. Aunt Shirley, Uncle Pat, Kelly and Casey January 29, 2016 / 9:22 am

    We love you all so much and are so sorry to hear this news. We are thinking of you and praying for you and will be even more so on Monday. We hope the surgery will be successful and the histology favorable. Meanwhile please give little Reba a big hug from us, and count on us any time if we can help. Reba always looks so happy and content, she reflects all the love you are giving her.

    Like

  9. Cousin Debbie January 29, 2016 / 10:14 am

    please know that you are all in our thoughts and prayers. Sending you are love and support.

    Like

    • Cousin Debbie January 29, 2016 / 10:16 am

      Meme will giggle at my obvious typo… our love and support,

      Like

  10. dinah January 29, 2016 / 10:44 am

    You are in the thoughts of so many people, people who love you and Reba and your whole family. We will be with you through this chapter as you move through it. And I’ll let my Japanese grandmother know, so she will keep praying every day for Reba’s health. Kazuko’s prayers are VERY strong! Smooch!!!

    Like

  11. Kathleen Kasdorf January 29, 2016 / 1:12 pm

    Oh Leah, how heartbreaking. You and your family are in my heart. Wishing you all the best in this disappointing situation.

    Like

  12. Juli Sanderson January 30, 2016 / 12:16 pm

    Holding your precious family in my thoughts and prayers. xo

    Like

  13. Carol poarch January 30, 2016 / 2:01 pm

    sending your family all our prayers and love from Delaware.
    From Kathy’s cousins patti, carol and dan

    Like

  14. Jivanti January 30, 2016 / 6:44 pm

    This is not the news we were all hoping for. You are all in our hearts and prayers.

    Like

  15. Helen & Paul Mumford January 31, 2016 / 8:03 am

    All of you are in our prayers. Our congregation lifted Baby Reba in prayer to our awsome God! Blessings!

    Like

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