Today 1/28/16 we met with our Stanford Oncology Team to discuss Reba’s scan results.
Unfortunately the tumor has grown.
It is now measuring 4.7 x 6.1 x 6.3 where as before it was 2.8 x 4.1 x 2.9
The next step is surgery, Monday February 1st. (Also Nik and my anniversary…)
The surgeons met with us today as well. Dr. Bruzoni will be conducting the surgery. It will involve a large incision, hip to hip, so he can really get in there to attempt to remove parts of the tumor. The tumor is encasing many vital blood vessels, so complete removal is not possible. He told us he will remove as much as he feels is safe.
Reba’s pain management post surgery will involve a spinal epidural, for a few days. We will be at the hospital for approximately 4-7 days depending on how Reba is feeling.
We are devastated. We have been getting good news for several months, and the port was removed- this came as a shock to us.
Our Doctors let us know a couple scenerios. One is that we may need to put in another port and treat with more chemotherapy. The other possibility is sometimes they have seen tumor growth in the past with neuroblastoma and it can indicate that the tumor is differenciating, or maturing. They have no way of knowing until they biopsy the mass on Monday. They will then test the tumor and be able to tell us if the mass is favorable or unfavorable then we will go from there. They will also do bone marrow aspirations during the surgery Monday.
Please keep us in your hearts next week as we enter this nightmare.
Reba Zumberge 
We love you guys and are here for you!!!
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Our heart is broken. Thinking of you, with all of our love, prayers and thoughts. May you all feel supported on that day. Love, b&e
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Praying for you all. Love you.
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This will never leave my heart,love you always, your family will always be with you! Your love and those who love you all are with you❤️❤️❤️🌹🌹🌹🎼🎶🎼🎶😘😘😘 and most decently with Zeba
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Our prayers to you, family and friends.
We love you guys, please count with us, we are here for you.
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We are so sorry to hear the news of this setback. We love you all so much and will be offering extra prayers on Monday for successful surgery and favorable histology. Please give Reba a big hug from us. She always looks so content and happy! Remember to call on us any time if there is anything we can do to help out❤️❤️❤️
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I am sorry to hear this set back. We are praying and wishing with all our hearts that good news will follow.
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Thinking of you all through this difficult time. Dr Bruzoni is AWESOME and did Aurora’s surgery! Sending tons of love!
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We love you all so much and are so sorry to hear this news. We are thinking of you and praying for you and will be even more so on Monday. We hope the surgery will be successful and the histology favorable. Meanwhile please give little Reba a big hug from us, and count on us any time if we can help. Reba always looks so happy and content, she reflects all the love you are giving her.
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please know that you are all in our thoughts and prayers. Sending you are love and support.
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Meme will giggle at my obvious typo… our love and support,
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You are in the thoughts of so many people, people who love you and Reba and your whole family. We will be with you through this chapter as you move through it. And I’ll let my Japanese grandmother know, so she will keep praying every day for Reba’s health. Kazuko’s prayers are VERY strong! Smooch!!!
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Oh Leah, how heartbreaking. You and your family are in my heart. Wishing you all the best in this disappointing situation.
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Holding your precious family in my thoughts and prayers. xo
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sending your family all our prayers and love from Delaware.
From Kathy’s cousins patti, carol and dan
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This is not the news we were all hoping for. You are all in our hearts and prayers.
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All of you are in our prayers. Our congregation lifted Baby Reba in prayer to our awsome God! Blessings!
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