Pathology Results

Today (2/9/2016) we met with our team to discuss the results of the pathology report. The report did not show that the tumor had matured; it showed there are still immature neuroblastoma cells. Which means more chemo. 

This time the chemo will be 5 days in a row with the Neulasta injection on the 6th day. Two chemo drugs will be used, cyclophosphamide (which she had before) and Topotecan (new to us).

They will do 2 cycles (each cycle is 21 days) then measure with MRI and MIBG. If needed after that point would be more cycles.

We are trying to stay positive. The prognosis is still very good in the long run. 

Because her port was already removed, she will now get a PICC line (basically a long term IV) in her arm, which we will need to flush daily at home and keep dressing on it.

 

Today at Lucile Packard by the “choo-choo”
  
Playing dress-up at home
 

Advertisements

9 thoughts on “Pathology Results

  1. Sarojani Rohan February 9, 2016 / 4:16 pm

    May you have continued faith—–one step at a time in this process of Reba’s long term health and vitality….
    sending love and prayers always,
    Sarojani

    Like

  2. Lara Kilpatrick February 9, 2016 / 4:18 pm

    Thank you for continuing to share the news as you navigate this journey. Thinking of you often. Sending love and prayers.

    Like

  3. Aunt Shirley, Uncle Pat, Kelly and Casey and Mary. February 9, 2016 / 4:52 pm

    Thanks so much for the update!! It’s very encouraging that the prognosis still looks good in the long-term. You’ll be in our thoughts and prayers over those chemo cycles. We’re in it for the long haul! I just hope you get time to catch up on your sleep before the next cycle! Lots of love from us all.

    Like

  4. Dave or Jane Kretzmann February 9, 2016 / 6:57 pm

    Hugs of encouragement to you both and Zoe. Yes, stay positive and keep your eyes on the day that darling Reba will be free of this tumor. Jane

    Date: Tue, 9 Feb 2016 23:34:52 +0000 To: djkretzmann@msn.com

    Like

  5. Diaz Family February 10, 2016 / 9:34 am

    Love you guys.

    Like

  6. Valery H February 10, 2016 / 7:25 pm

    Still praying for our precious baby. What a trooper she is!! ❤️

    Like

  7. Linda Burman-Hall February 11, 2016 / 1:37 pm

    Thinking of you and Reba. What a continual shock this kind of journey is. So glad the prognosis is positive for your precious child, who seems to be taking it in stride.

    Like

  8. Barbara & Ed February 11, 2016 / 3:03 pm

    Thinking of you, love from us…she is so so sweet ❤

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s