Today (2/9/2016) we met with our team to discuss the results of the pathology report. The report did not show that the tumor had matured; it showed there are still immature neuroblastoma cells. Which means more chemo.
This time the chemo will be 5 days in a row with the Neulasta injection on the 6th day. Two chemo drugs will be used, cyclophosphamide (which she had before) and Topotecan (new to us).
They will do 2 cycles (each cycle is 21 days) then measure with MRI and MIBG. If needed after that point would be more cycles.
We are trying to stay positive. The prognosis is still very good in the long run.
Because her port was already removed, she will now get a PICC line (basically a long term IV) in her arm, which we will need to flush daily at home and keep dressing on it.
Reba Zumberge 
May you have continued faith—–one step at a time in this process of Reba’s long term health and vitality….
sending love and prayers always,
Sarojani
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Thank you for continuing to share the news as you navigate this journey. Thinking of you often. Sending love and prayers.
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Thanks so much for the update!! It’s very encouraging that the prognosis still looks good in the long-term. You’ll be in our thoughts and prayers over those chemo cycles. We’re in it for the long haul! I just hope you get time to catch up on your sleep before the next cycle! Lots of love from us all.
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Hugs of encouragement to you both and Zoe. Yes, stay positive and keep your eyes on the day that darling Reba will be free of this tumor. Jane
Date: Tue, 9 Feb 2016 23:34:52 +0000 To: djkretzmann@msn.com
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We love you so much ❤️❤️❤️
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Love you guys.
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Still praying for our precious baby. What a trooper she is!! ❤️
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Thinking of you and Reba. What a continual shock this kind of journey is. So glad the prognosis is positive for your precious child, who seems to be taking it in stride.
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Thinking of you, love from us…she is so so sweet ❤
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