We met with our oncology team today (7/21/16) to discuss the new plan from here. We know from the biopsies that the tumor is showing signs of differentiation but also showing signs of immature neuroblastoma cells as well as scar tissue.
The urine test showed about the same numbers although down slightly (which is good).
The plan moving forward is to do two more cycles of chemotherapy, using two new drugs- vincristine and irinotecan. The vincristine is given only on the first day of the cycle and the irinotecan is given via infusion over 5 days. The sixth day she will get the Neulasta injection. Each cycle is 21 days. After the two cycles they will image the tumor again with MRI to see what it’s doing. The main side effects can be severe diarrhea and tingling/numbness of the extremities. We are praying she can tolerate the drugs well. It’s scary giving her new drugs, but we are told these drugs are better tolerated than other chemotherapy drugs, including drugs she has already gotten in the past. We are really hoping this chemo will cause the tumor to further differentiate until it has no more power.