Today is childhood cancer awareness day. I knew it was childhood cancer awareness month but didn’t know it was the day today, September 8th until we got to LPCH and saw the decorations….
Today 9/8 we were back at LPCH for the results of last week’s MRI and MIBG (9/1/16.) The results showed that the tumor is still about the same size. Although we want the tumor to shrink (!) it is good that the tumor is not growing!
At this point Reba is now, starting today on an oral chemo called isotretinoin. Oddly this drug is also known as accutane- a drug used to treat acne. In a Petri dish isotretinoin kills neuroblastoma cells and it has had success in patients with neuroblastoma as well. Hopefully the isotretinoin will help to further differentiate the neuroblastoma cells. Our Doctors are projecting her taking this Med for up to six months. They will continue to monitor her closely.
The challenge in administering this Med is it is a pill that has to be swallowed twice a day- which is hard for a two year old. But we are happy to report tonight Reba swallowed the first pill with yogurt like a champ! We hope this continues!!
Reba has had her PICC line in since February- keep your fingers crossed that she may be able to get it out soon…