Results and Plan

Today is childhood cancer awareness day. I knew it was childhood cancer awareness month but didn’t know it was the day today, September 8th until we got to LPCH and saw the decorations….

Today 9/8 we were back at LPCH for the results of last week’s MRI and MIBG (9/1/16.) The results showed that the tumor is still about the same size. Although we want the tumor to shrink (!) it is good that the tumor is not growing!

At this point Reba is now, starting today on an oral chemo called isotretinoin. Oddly this drug is also known as accutane- a drug used to treat acne. In a Petri dish isotretinoin kills neuroblastoma cells and it has had success in patients with neuroblastoma as well. Hopefully the isotretinoin will help to further differentiate the neuroblastoma cells. Our Doctors are projecting her taking this Med for up to six months. They will continue to monitor her closely.

The challenge in administering this Med is it is a pill that has to be swallowed twice a day- which is hard for a two year old. But we are happy to report tonight Reba swallowed the first pill with yogurt like a champ! We hope this continues!!

Reba has had her PICC line in since February- keep your fingers crossed that she may be able to get it out soon…

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4 thoughts on “Results and Plan

  1. Uncle Pat, Aunt Shirley, Kelly Ann and Casey September 8, 2016 / 9:12 pm

    Thanks so much for the update Leah and Nik and yes- good to know there is no new growth! We’ll be praying that Reba likes the taste of her new pill!! Much love and hugs to all you Zumberges- we have been thinking of you all day and praying of course. Hoping that this new medication will work wonders!

    Liked by 1 person

  2. Katrina Learned September 8, 2016 / 9:24 pm

    So glad it is not growing! Sending positive thoughts that the new drug will shrink it! Go Reba and hang in there family! We’re sending tons of love!

    Like

  3. Ashley September 9, 2016 / 7:11 am

    The Streebig family is sending love!

    Like

  4. Jivanti September 13, 2016 / 4:58 pm

    Sending love to all and hoping Reba will have a Very Happy Birthday this month! On oral meds only!

    Like

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