Today 3/6/17 we were back at LPCH for the results from last week’s scans.
Basically everything seems to be the same. The MIBG is still lighting up and the MRI is still measuring the tumor about the same: 4.1 x 5.1 x 6.4 cm whereas the last MRI measured 3.5 x 5.1 x 6.6 cm. The impression is that it is the same with slight variance due to the difficulty of measuring the mass (different people measuring).
The next step will be a PET scan. This is a different kind of scan that will show us where there are regions of inflammation. We are hoping of course for it to be negative where her tumor is. In some cases the MIBG will still light up even when the neuroblastoma has matured or differentiated. So the PET scan will give us more information.
We are hoping hoping hoping the PET scan is negative because then we will be able to go under observation for a bit, meaning no treatmeant . If it’s positive they may talk to us about more treatment, but not for certain.
In other news Zoe fractured her clavicle… Never a dull moment.
Reba Zumberge 
Glad to hear there has been no new growth and hoping for good news after the PET scan. Please tell Zoe and Reba their hats are adorable. We hope Zoe’s clavicle heals up soon poor thing! Lots of love to you all!
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Love to you and your beautiful girls. Hoping the PET scan has better news.
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