Wednesday 1/16/19 we were back for the results of the scans and everything remains stable. Thank God!!
The MIBG curie score is still a one, so still lighting up but very little. The mass is measuring 8.5 x 4.5 x 8 cm, which varied a bit from last time but they think it’s because of the hard to measure shape of the mass. Another encouraging piece of news is her VMA and HVA levels are lower, now at 21.8 and 45.7. (This is good- heading in the right direction, down instead of up!!)
Our oncologist of 4 years also let us know he is moving hospitals. We are of course surprised- happy for him, but nervous for us. Who will the next oncologist be? Will we stay at Stanford? How can our oncologist who has been there since the beginning leave? Do we follow him? We have a lot of considering to do to help guide our way. Please pray for clarity in making the right decision.
The plan moving forward is to have scans in May and also bone marrow aspirates. We are so thankful for continued stability. May we never forget or get too comfortable in our bliss.