Yearly scan at Primary Children’s Hospital

It has been a year (!) since we have looked at the mass in Reba’s abdomen. Today went really well. It was a long day- first labs, then a heart EKG, then a thorough ultrasound of her abdomen, followed by appointments with her oncologist and a new appointment with survivorship clinic. Starting the survivorship clinic is exciting because it is a big support system Reba can lean into as she gets older and more independent. Her heart EKG looks great and her abdomen ultrasound shows that the tumor still measured about the same and is stable. The plan is to do MRI in a year and maintain a schedule that alternates between MRIs and ultrasound. We are so thankful for this continued stability and so very thankful for all the amazing heath providers.

Almost 9 with a very bright future. πŸ’—

11 thoughts on “Yearly scan at Primary Children’s Hospital

  1. Holly Ota's avatar Holly Ota June 26, 2023 / 7:37 pm

    I love getting your good news!

    Liked by 1 person

  2. Cathy's avatar Cathy June 26, 2023 / 7:49 pm

    So glad to hear this news. She’s such a brave one.

    Liked by 1 person

  3. The Russ Family's avatar The Russ Family June 26, 2023 / 8:10 pm

    Great news! Very thankful all is stable. ❀️

    Liked by 1 person

  4. Anne's avatar Anne June 26, 2023 / 8:39 pm

    So thankful for the great care you are continuing to receive. After less than a year of dealing with my own abdominal mass intruder, I am in awe of Reba’s courage and of your faithfulness in maintaining her childhood and your family life in the most “normal” way possible. This is all really wonderful news – prayers that it all continues to get better and better!

    Liked by 1 person

  5. Melanie Wetzel's avatar Melanie Wetzel June 26, 2023 / 9:23 pm

    So glad to hear this! Thought and prayed a lot today (Aaliyah even said a prayer).

    Liked by 1 person

  6. Stephanie Raugust's avatar Stephanie Raugust June 27, 2023 / 6:02 am

    We are so happy to hear this good news!!! All the Love ❀️ and great Family strength gives us such Joy!!!
    Reba is so strong and so Love too! The creativity and hard work your family does for each other is an amazing thing to witness! We keep you in our prayers always and in our hearts deeply!

    Liked by 1 person

  7. Sarojani's avatar Sarojani June 27, 2023 / 7:34 am

    So happy to hear this news! The amount of light shining through Reba is amazing and a true testament to the love of God and her family and friends who so steadfastly support her . Yay !!!!!

    Liked by 1 person

  8. Mary Jane Cope's avatar Mary Jane Cope June 27, 2023 / 11:54 am

    So happy to hear this good news; thank you for sharing!

    Liked by 1 person

  9. Dave or Jane Kretzmann's avatar Dave or Jane Kretzmann July 5, 2023 / 3:00 pm

    Nik and Leah, this is such good news. She is really growing up!!
    Jane Kretzmann (moved from Good Shepherd in Salinas to San Diego)

    Liked by 1 person

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