MIBG Injection

Today 9/6 we were back at LPCH for the radioactive isotope injection in preparation for the MIBG scan tomorrow. Reba has had this injection many times but today had a reaction that was really scary. She couldn’t breathe, and was coughing, got rashes on her arms and chest and her nose turned blue/purple. To make matters worse, in the nuclear medicine department (where we were) there weren’t any pediatric oxygen hook ups or blood pressure. It was like everyone was super unprepared and like ten people in room not helping. After the coughing she was really pale, lethargic and non responsive. As parents we felt so hopeless.

Things got better slowly. They wheeled us over to the emergency room where we stayed for the afternoon. She received Benydryll and steroids. They are telling us she had anaphylaxis and now we have an epi-pen to keep on us at all times. We have so many questions about the future, especially with future MIBGs.

Please pray for no surprises tomorrow. We have a long day tomorrow with MIBG scan and MRI under anesthesia.

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10 thoughts on “MIBG Injection

  1. Sondra S Rohan September 6, 2017 / 6:53 pm

    Soo sorry to hear of today’s awful scare…..
    I am lighting a candle right now for Reba and you all—that tomorrow will be a brighter and smoother day.
    Sending Love and prayers always.

    Like

  2. Jivanti September 6, 2017 / 7:08 pm

    What a frightening experience. May tomorrow bring hope and peace.
    Much love to you all,
    Jivanti

    Like

  3. Valery September 6, 2017 / 8:14 pm

    What a terrible scare!
    I’ll be praying for smooth sailing tomorrow. May God bless you all and give you strength.

    Like

  4. Mary Jane Cope September 6, 2017 / 9:12 pm

    I’m so sorry you had to endure this frightening experience! Wrapping you all in prayer; God bless you with continuing courage and strength.

    Like

  5. Uncle Pat, Aunt Shirley, Kelly and Casey September 6, 2017 / 10:34 pm

    That sounds scary! Praying for an uneventful scan tomorrow and for good news!

    Like

  6. Anne Vaaler September 7, 2017 / 12:29 am

    I’m so sorry it was such a rough day. Keeping you all in prayers that tomorrow is calm, with helpers who are prepared and knowledgeable, and the outcome is positive for improvement.

    Like

  7. raugusts September 7, 2017 / 8:42 am

    Oh my dear friend, this is scary all our Love ❤️ and Prayers are with you all 🙏

    Like

  8. Gail Groves September 7, 2017 / 8:57 am

    So sorry she had a reaction. Why weren’t they prepared? Very scary. We are thinking of all of you today.

    Like

  9. GG and Grandpa Jim September 7, 2017 / 9:35 am

    So concerned, and know our prayers are
    with you all.

    Like

  10. Flora McKimson September 8, 2017 / 7:58 am

    My prayers are with you, so sorry she and you had to go through this.

    Like

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