Today 9/6 we were back at LPCH for the radioactive isotope injection in preparation for the MIBG scan tomorrow. Reba has had this injection many times but today had a reaction that was really scary. She couldn’t breathe, and was coughing, got rashes on her arms and chest and her nose turned blue/purple. To make matters worse, in the nuclear medicine department (where we were) there weren’t any pediatric oxygen hook ups or blood pressure. It was like everyone was super unprepared and like ten people in room not helping. After the coughing she was really pale, lethargic and non responsive. As parents we felt so hopeless.
Things got better slowly. They wheeled us over to the emergency room where we stayed for the afternoon. She received Benydryll and steroids. They are telling us she had anaphylaxis and now we have an epi-pen to keep on us at all times. We have so many questions about the future, especially with future MIBGs.
Please pray for no surprises tomorrow. We have a long day tomorrow with MIBG scan and MRI under anesthesia.