Today May 21st we were back at LPCH for the results of the bone marrow aspirates, chest CT, MRI, and MIBG scans from last week.
It is always agonizing to wait for these results. We spent the weekend down south at my cousin’s graduation from college, which was a lovely diversion but still agonizing.
The results are great, still stable!
The bone marrow is normal.
Her chest CT is clear.
The MIBG score is still a 1. It is still lighting up but not any more than it was previously.
The MRI is still measuring about the same. The mass is now 4.4 x 4.2 x 7.1 cm.
So in summary the mass is still present at about the same size. There are no new locations of disease. She is clinically doing fantastic.
The next step is labs and check up in 6 weeks, and scans in 12 weeks.
Big sigh of relief for all.
After we met with her oncologist we headed over to cardiology for an EKG and ultrasound of Reba’s heart.
Some of the chemotherapy she had can affect the heart and hearing so we get these done yearly. Reba held still and was a champ the whole time. She got to eat her crackers and watch a show. I’ll call for results on these tomorrow…
Breathing a sigh of relief here too! Good news! We just loved having you down for Kelly’s graduation so thank you all so much for making the trip. The girls were just adorable, and Reba always looks so well and happy! Now we have 12 more weeks to pray for complete resolution of this mass. Love and hugs to all.
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What wonderful news! We’ll keep praying for you all and we’ll continue to marvel at the sweetness and loveliness of Reba as well as her steely strength and courage. She’s such a lesson in grace and patience. But, of course, she’s modeling what she sees and learns from her amazing mommy and daddy and sissy. Much love, h
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Such good news! So happy to hear it 👍
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Sending all my love and prayers to our little “warrior!”
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We are so Happy 😁Reba your are magnificent, and Lea and family giant , gaint hugs 🤗 of Joy ❤️ Our prays never stop 🛑 the heart felt way you are face these challenge are inspirational Prayers 🙏🎶🎶🎶and song will continue ❤️😘😘😘🐳🐳
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