Back to LPCH

Every 12 weeks we come back here.

In between we live a blissful normal life- we enjoyed summer traveling, swim lessons, gymnastics, school, running and playing, magical creative play, and also blissful boring mundane life. All the good things…

Today (8/22/18) we were back at LPCH. It’s that time again. Today Reba had a chest CT, IV start and MIBG injection. The MIBG injection is the scariest for us because of previous reaction to the radioactive isotope. We started premedicating at 2am last night, then again at 8 am and 2 pm.

Everything went fine. We all took a huge deep breath when the injection went ok.

Tomorrow we are back for a long anesthesia day- first MRI then MIBG scans.

4 thoughts on “Back to LPCH

  1. Sondra S Rohan August 22, 2018 / 6:39 pm

    May all go well and may her pictures show a healthy little girl who just wants to play!
    Your community of witness and support is still here rooting for you ALL and sending buckets of love!

    Liked by 1 person

  2. Kathy Tucker August 22, 2018 / 8:13 pm

    I’ve been thinking of and praying for you all. Thank you for the update. XO Kathy and Jim and your friends at Seascape Village Fitness Center.

    Liked by 1 person

  3. Yaya and Tata August 22, 2018 / 9:26 pm

    So happy the injection went ok and we are praying for a smooth day tomorrow! 💗🙏💗

    Liked by 1 person

  4. Aunt Shirley,Uncle Pat, Kelly Ann and Casey August 23, 2018 / 4:32 pm

    Praying for you all during this next round of testing and hoping for good news! Love and miss you all. Enjoying Reba’s fashion show 😊❤️👗

    Liked by 1 person

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