Every 12 weeks we come back here.
In between we live a blissful normal life- we enjoyed summer traveling, swim lessons, gymnastics, school, running and playing, magical creative play, and also blissful boring mundane life. All the good things…
Today (8/22/18) we were back at LPCH. It’s that time again. Today Reba had a chest CT, IV start and MIBG injection. The MIBG injection is the scariest for us because of previous reaction to the radioactive isotope. We started premedicating at 2am last night, then again at 8 am and 2 pm.
Everything went fine. We all took a huge deep breath when the injection went ok.
Tomorrow we are back for a long anesthesia day- first MRI then MIBG scans.