MRI Follow-up Scan

We had a great day at home yesterday and today we are back for Reba’s 2nd MRI, 4th time under general anesthesia. We are hoping that the MRI will show that the tumor is shrinking, but we wont know until Thursday, May 28th. Her labs this morning showed low hemoglobin, so now Reba is getting a blood transfusion and then we go home! We are hoping for a nice, quiet weekend. Reba’s home-nurse, Lauren, comes Tuesday to draw blood. Happy Memorial Day weekend!

Playing this morning before leaving the house.


Waking up after being under anesthesia for MRI.
Done with MRI, time for a blood transfusion.


7 thoughts on “MRI Follow-up Scan

  1. Cousin Debbie May 23, 2015 / 11:18 am

    Nik and Leah, please know that you are in our thoughts and prayers. I’m in awe of your grace and strength as you fight this terrible disease with Reba.

    I’m heartbroken that your beautiful girl is having to fight so hard so early in her life, I’m thankful for the compassionate medical team caring for her.

    Thank you for keeping us all informed, I know the struggle you are going through, please draw strength from knowing your family is praying hard for Reba. I hope you have a normal, wonderful weekend at home kissing and loving your girls!

    Liked by 1 person

  2. Cathy Cadd May 24, 2015 / 9:40 am

    Nik and Leah, I just found your blog and wanted to let you know that we are holding your family in our hearts. If there is anything we can do for any of you, let us know. Sending lots of love to Reba today. Bob and Cathy Cadd

    Liked by 1 person

  3. Linda May 25, 2015 / 5:01 pm

    Reba looks so cute and healthy even tho she is going thru such tough times. Love the pictures Grandma Lois is watching over her as all of our angels from the family are.Hang in there we are thinking of you!!!

    Liked by 1 person

  4. Cousin Bev May 26, 2015 / 7:57 pm

    Nik & Leah, You are all in my prayers everyday. I have a friend who’s son has the same thing ( they call it the terrible tribble), He was 9 when they discovered it during a MRI for another condition, also stage 3, he is now 12 and the tribble is “stable”- We are hopeful – because that is what life is about – hope and love and faith. You have all in abundance – bless you and your beautiful family.

    Liked by 1 person

  5. Jane and Dave Kretzmann May 27, 2015 / 3:45 pm

    Leah and Nic. I’ve just followed your journey via your amazing blog. Only just learned of Reba’s plight. What a beautiful wee one. Prayers for you guys. Keep smiling. Jane

    Liked by 1 person

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