Long day! 5/17/18

The good news is that we are done with today!

Today was a long anesthesia with iv start, bone marrow aspirates, MRI scan and MIBG scan.

A few hiccups included a “false start” or “start-pause” of the anesthesia, where they started but then stopped because of some paper I had to sign. While we were all waiting, Reba was very upset and drugged on propofol. She felt horrible. Finally the anesthesiologist said screw it we are starting and put her to sleep. I signed the stupid paper later. I also filed a complaint because it was unnecessary stress for Reba to feel that way.

Second hiccup was they gave her 5 additional drugs while under anesthesia which was not part of the plan. They gave her propofol (which we were expecting) Fentanyl, anesthesia gas (which makes her nauseous), zofran (to help with nausea) Tylenol (which I’m fine with) and predadex, which I’m still not sure what it is, some kind of additional sedative and according to the anesthesiologist an alpha 1 agonist which slows heart rate. This added insult to injury. I was told she would only be getting the propofol. She was also given a breathing tube when they told me that wouldn’t be necessary today. So when she woke up she had a bad cough and sore throat.

The good news is we are done and home now! It was a long day, just me and Reba. Hospitals can be very lonely.

The bone marrow aspirates were done in her lower back and are pretty ouchy now.

Please pray for great results on Monday!

Before and after:

4 thoughts on “Long day! 5/17/18

  1. Bev Dittberner May 18, 2018 / 10:11 am

    You are all amazing- Reba’s angels, Sending love and prayers – always.


  2. Yaya and Tata May 18, 2018 / 10:28 am

    We are always humbled by what Reba endures and blown away by how amazing she is. So glad yesterday is over. ❤️❤️❤️
    Happy Birthday, Leah! You are awesome! 😘


  3. Sondra S Rohan May 18, 2018 / 10:41 am

    Soo sorry for that awful day yesterday. May only good things come from it. I will hold candle for Monday’s results and send some of Reba’s Fairy Godmothers to sit on each of your family’s shoulders.
    Love to you and all there

    Call if you ever want company for any long rides or strange/stressful waiting situations….or just to share a cup of tea!

    Liked by 1 person

  4. Joanne May 18, 2018 / 6:41 pm

    Dear Saint Leah I am glad you put in a complaint; “hiccup” is too kind a term. I am so sorry that happened and about the extra drugs as well. Definitely a screaming moment. Reba is so beautiful. Good on all of you.


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